Access to Ambulatory Cardiology Care: Learning from Families Managing Pediatric Heart Disease
Larissa Wenren, Maria Perez Carballo, Kira Fried, Rebecca Matulsky, Shannon Engstrand, Tiffany Folks, Kathy Jenkins, Sarah de Ferranti, Susan Saleeb, Jean Connor · 2026
Read Access to Ambulatory Cardiology Care: Learning from Families Managing Pediatric Heart Disease by Larissa Wenren, Maria Perez Carballo, Kira Fried, Rebecca Matulsky, Shannon Engstrand, Tiffany Folks, Kathy Jenkins, Sarah de Ferranti, Susan Saleeb, Jean Connor (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13521212.txt.
Description
Larissa Wenren and colleagues interview in 2026 caregivers whose children live with complex heart disease and missed clinic visits. Missed visits can worsen health. Missed visits can also push care into emergency rooms. The team asked what blocks visits and what helps families return.
Talks covered 19 caregivers at one children's hospital. Black and Hispanic families were sought on purpose. Spanish speakers were included as well. Blocks spanned booking access and telehealth limits. Missed physical exams on video visits worried parents. Housing, transport and job strain added weight. Trusted doctor ties helped families stay in care. Parent ideas for fixes close the study.
Catalog record
| CREATOR | Larissa Wenren, Maria Perez Carballo, Kira Fried, Rebecca Matulsky, Shannon Engstrand, Tiffany Folks, Kathy Jenkins, Sarah de Ferranti, Susan Saleeb, Jean Connor |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 58894 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |