The Complex Dynamics of Caregiving for ADRD Patients in Uganda: Selection Factors, Challenges, and Benefits
Joy Louise Gumikiriza- Onoria, Mark Kaddu- Mukasa, Kamada Lwere, Dennis Buwembo, Rita Nassanga, Noeline Nakasujja · 2026
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Description
Joy Louise Gumikiriza-Onoria and co-authors explore how families in Uganda choose and support caregivers for relatives with dementia. Their 2026 study draws on deep interviews with fourteen family caregivers in Wakiso District. Interviews were held in Luganda and analyzed for themes, guided by a mental models framework.
Care fell to relatives bound by long closeness, duty, or the patient's own preference. Caregivers described heavy emotional, physical, money, and social costs, sometimes quitting work or school to help. Yet many also gained knowledge, empathy, and a sense of giving back to those who once raised them. The authors show care in this setting as both a burden and a family bond. They argue support programs must fit this local reality.
Catalog record
| CREATOR | Joy Louise Gumikiriza- Onoria, Mark Kaddu- Mukasa, Kamada Lwere, Dennis Buwembo, Rita Nassanga, Noeline Nakasujja |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |