Transition From Child to Adult Care in Paediatric Neurological Disorders in Europe—A Joint EAN‐EPNS Survey of Current Practices for Healthcare Providers
Dana Craiu, Cristina Cazacu, Maria T Papadopoulou, Ming Lim, Kevin Rostasy, Anna C Jansen, Leena M Haataja, Ilona Anna Kopyta, Kristl G Claeys, Guido Rubboli, Chiara Ferrazzoli, Ronan McGinty, Maria Roberta Cilio, Maria Lolich, Dimitrios Zafeiriou, Nadia Bahi‐Buisson, Elena Moro, Gereon R Fink, Thom · 2026
Read Transition From Child to Adult Care in Paediatric Neurological Disorders in Europe—A Joint EAN‐EPNS Survey of Current Practices for Healthcare Providers by Dana Craiu, Cristina Cazacu, Maria T Papadopoulou, Ming Lim, Kevin Rostasy, Anna C Jansen, Leena M Haataja, Ilona Anna Kopyta, Kristl G Claeys, Guido Rubboli, Chiara Ferrazzoli, Ronan McGinty, Maria Roberta Cilio, Maria Lolich, Dimitrios Zafeiriou, Nadia Bahi‐Buisson, Elena Moro, Gereon R Fink, Thom (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13675786.txt.
Description
Dana Craiu and co-authors survey how young people with brain disorders move from child to adult care in Europe, in a 2026 study. That move is essential, yet it is structured unevenly across countries. A twenty-two question survey went to members of two European neurology societies in early 2025, and more than three hundred replies were analysed.
Only about thirty-eight percent of respondents said their country had a transition programme. Where programmes existed, the move began earlier and joint child-adult clinics were far more common. The top barriers were lack of mixed teams, limited adult neurology capacity, and trouble reaching adult services. Priorities for repair included joint clinics, national guidance, specialist networks, and a named coordinator. Satisfaction was low overall. The authors call for coordinated, patient-centred pathways across Europe.
Catalog record
| CREATOR | Dana Craiu, Cristina Cazacu, Maria T Papadopoulou, Ming Lim, Kevin Rostasy, Anna C Jansen, Leena M Haataja, Ilona Anna Kopyta, Kristl G Claeys, Guido Rubboli, Chiara Ferrazzoli, Ronan McGinty, Maria Roberta Cilio, Maria Lolich, Dimitrios Zafeiriou, Nadia Bahi‐Buisson, Elena Moro, Gereon R Fink, Thom |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 42 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |