A Comprehensive Toolkit to Support Self‐Report Questionnaires for Autistic Adults With Cognitive Disability
Vicky Caron, Isabelle Courcy, Isabelle Soulières · 2026
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Description
Vicky Caron, Isabelle Courcy, and Isabelle Soulières built a toolkit that helps autistic adults with cognitive disability answer surveys about their own lives, in a 2026 paper. Such adults are often left out of self-report research, even though their own views are key to fair quality-of-life checks. The team set out to design supports that clinics and researchers can adjust.
Ten experts joined three rounds of consultation to pick the supports. The final toolkit holds sixty-four accommodations plus one cross-cutting rule: keep the protocol flexible. Twenty-two autistic adults then used the supports with quality-of-life surveys, each joined by a parent. Feedback praised several supports and flagged others for improvement. The authors say the toolkit can widen who gets a direct voice in research and service planning.
Catalog record
| CREATOR | Vicky Caron, Isabelle Courcy, Isabelle Soulières |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 71 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |