Umfrage zur Versorgungssituation von Patient:innen mit systemischem Lupus erythematodes und systemischer Sklerose mit Lungenbeteiligung in Rheinland-Pfalz und dem Saarland

Description

Care for lupus and systemic sclerosis with lung involvement in two German states is surveyed in a German-language paper led by Haßdenteufel. These connective-tissue diseases affect many organs at once and need specialist care. Yet lung involvement carries weight for prognosis, and real care patterns remain poorly mapped. Haßdenteufel and colleagues sent a questionnaire to more than two thousand practices between late 2024 and early 2025. It collected data on structures, patient numbers, and treatments.

Sixty-seven facilities reported over fifteen hundred patients, about eighteen percent with lung involvement, with care centred in special centres. Outside centres, glucocorticoids at higher doses were used more often. Centres achieved far lower high-dose steroid use through greater use of biologics and other drugs, notably mycophenolate mofetil. Haßdenteufel and colleagues identify steroid, uneven care as a key deficit. They call for more clinics and earlier specialist referral.

Catalog record

Source: https://europepmc.org/articles/PMC13649884