Parental anxiety in differences of sex development and hypospadias: a psychosocial characterization
Sarah F Schlegel, Jessica Kremen, Alayna Dutcher, Stacey Pereira, Ingrid A Holm, Yee-Ming Chan · 2026
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Description
Sarah Schlegel and co-authors published this 2026 survey study on anxiety in parents of children with differences of sex development or hypospadias. These urogenital conditions bring real distress to families, but what drives the anxiety was poorly charted. The team surveyed parents at a pediatric specialty center.
One hundred eight parents of affected children answered, alongside 346 parents from a newborn genome study for comparison. A third of the condition group showed clinically significant anxiety, matching parents of intensive-care newborns and clearly above parents of healthy babies. Forty-one percent blamed themselves for the condition, and sixteen percent blamed their partner. Stigma tracked with worse quality of life. The authors use the profile to point support where it bites hardest.
Catalog record
| CREATOR | Sarah F Schlegel, Jessica Kremen, Alayna Dutcher, Stacey Pereira, Ingrid A Holm, Yee-Ming Chan |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 50 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |