Are we measuring what matters? Aligning research outcomes with patient priorities in respiratory health
Juliana Carvalho Ferreira, Cecilia María Patino · 2026
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Description
Juliana Carvalho Ferreira and Cecilia María Patino say lung research oft scores what is easy, not what sick people prize. Their case tracks ICU folks on breathing machines where double-trigger bursts foretold more machine days, fewer free days, and worse 28-day life odds. Those scores are plain to count but mute on how people feel or fare after ICU.
Sick people prize eased breath, less tiredness, daily tasks done alone, good life quality, and no flare-ups or re-stays. Lung scores can gain a bit on paper with no felt gain. Trial chiefs should bring patient voices in from start to end and lift felt scores in trials and care rules.
Catalog record
| CREATOR | Juliana Carvalho Ferreira, Cecilia María Patino |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 7 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |