Diagnosis and management guidelines for infantile epileptic spasms syndrome around the world: A scoping review and comparative study of international approaches
Gozde Erdemir, Chethan K Rao, Anne Francine Pino, Christina Briscoe, Debopam Samanta, Jo M Wilmshurst, Sonal Bhatia, Jessica L Carpenter, Christina Hoei‐Hansen, Puneet Jain, Tommy Stodberg, Robyn Whitney, Ryuki Matsuura, Karina Rosso Astorga, Keryma Acevedo Gallinato, Pratibha Singhi, Aristides Hadijinicolaou, Gia Melikishvili, Patricia Smeyers, Nicola Specchio, Stéphane Auvin, Pediatric Epilepsy Research Consortium Infantile Spasm Work Group and International Committee · 2026
Read Diagnosis and management guidelines for infantile epileptic spasms syndrome around the world: A scoping review and comparative study of international approaches by Gozde Erdemir, Chethan K Rao, Anne Francine Pino, Christina Briscoe, Debopam Samanta, Jo M Wilmshurst, Sonal Bhatia, Jessica L Carpenter, Christina Hoei‐Hansen, Puneet Jain, Tommy Stodberg, Robyn Whitney, Ryuki Matsuura, Karina Rosso Astorga, Keryma Acevedo Gallinato, Pratibha Singhi, Aristides Hadijinicolaou, Gia Melikishvili, Patricia Smeyers, Nicola Specchio, Stéphane Auvin, Pediatric Epilepsy Research Consortium Infantile Spasm Work Group and International Committee (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13592474.txt.
Description
Gozde Erdemir leads a large team comparing, in 2026, world guidelines for infantile epileptic spasms syndrome, a severe baby epilepsy where fast care guards brain development. Their scoping review gathered 28 guidelines, half published and half shared by hospitals, spanning rich and poorer nations. Brain wave testing was advised nearly everywhere. Brain imaging and gene testing appeared far less often, they found.
Drug advice shifted over two decades: hormone treatment led early guidance, while steroid tablets and vigabatrin gained ground later. Combined therapy appeared after 2017 in a quarter of recent guidance. Poorer nations leaned uniformly on the cheap steroid, likely reflecting access and cost. Erdemir and the team call for shared global guidance to close the gap.
Catalog record
| CREATOR | Gozde Erdemir, Chethan K Rao, Anne Francine Pino, Christina Briscoe, Debopam Samanta, Jo M Wilmshurst, Sonal Bhatia, Jessica L Carpenter, Christina Hoei‐Hansen, Puneet Jain, Tommy Stodberg, Robyn Whitney, Ryuki Matsuura, Karina Rosso Astorga, Keryma Acevedo Gallinato, Pratibha Singhi, Aristides Hadijinicolaou, Gia Melikishvili, Patricia Smeyers, Nicola Specchio, Stéphane Auvin, Pediatric Epilepsy Research Consortium Infantile Spasm Work Group and International Committee |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 53484 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |