How parents derive their informed role preferences for end-of-life medical decision-making for (unborn) children in perinatology: a meta-ethnography of qualitative interview studies
Katja Kuehlmeyer, Maria F Beyer, Pezi Mang, Andreas W Flemmer, Esther S Schouten · 2026
Read How parents derive their informed role preferences for end-of-life medical decision-making for (unborn) children in perinatology: a meta-ethnography of qualitative interview studies by Katja Kuehlmeyer, Maria F Beyer, Pezi Mang, Andreas W Flemmer, Esther S Schouten (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13589376.txt.
Description
Katja Kuehlmeyer and four co-authors synthesize in 2026 how parents form preferences about their role in end-of-life decisions for babies. Guidelines urge shared decision-making with parents, yet parents' actual wishes vary and shift. Sixteen interview studies feed this meta-ethnography.
Parents who lived through one role split judge it differently over time, and their verdict becomes a wish to repeat or avoid that role later. Four practice models emerge, from tacit approval of doctors' plans to parents determining the course. The guideline favorite, shared deliberation, appeared in only two studies' accounts. The synthesis gives clinicians a map of how preferences actually form.
Catalog record
| CREATOR | Katja Kuehlmeyer, Maria F Beyer, Pezi Mang, Andreas W Flemmer, Esther S Schouten |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 69 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |