Too little, too late? The burden of delayed care in NTDT
Khaled M. Musallam, Thomas D. Coates, Ali T. Taher · 2026
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Description
Musallam and co-authors wrote a 2026 editorial on the cost of late expert care for a blood disease that needs no routine transfusions. A large United States study in the same issue tracked patients sent to expert centers only as adults. Near half then needed to start regular transfusions at once.
By that late point, many already held iron overload, lung pressure strain, clots, gland harm, or blood making outside the marrow. Like counts from the Mediterranean, the Middle East, and Asia tell the same tale, they note. The disease is not mild: spare blood making, cell bursting, and iron gain grind organs down over decades. Since harm builds slowly, early watch and timely care can bend its course, they urge.
Catalog record
| CREATOR | Khaled M. Musallam, Thomas D. Coates, Ali T. Taher |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 10 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |