Preparing Genetic Counselors for Advocacy Partnerships: A Novel Internship Model
Marin Kalista, Lisa Jay Kessler, Deborah Requesens, Kathleen D. Valverde, Rebecca Mueller · 2026
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Description
Marin Kalista and colleagues describe a ten week advocacy placement built into a genetic counseling master's program at the University of Pennsylvania. Counseling students pair with a patient advocacy group for a single disease and deliver real projects for that group. Patient groups have grown fast beside genomic medicine, yet few reports show how advocacy fits into counselor training.
The placement grew from a campus rare disease center's starter program into a student exchange scheme the authors lay out step by step. Four years of running it supply the reflections, drawn from students, staff, and partner groups alike. Sample projects show the range, from family guides to event support. The authors hope the blueprint helps other programs grow advocacy skills, and they flag disability teaching as the next strand to weave in.
Catalog record
| CREATOR | Marin Kalista, Lisa Jay Kessler, Deborah Requesens, Kathleen D. Valverde, Rebecca Mueller |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 46 KB |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |