The Cost of Control: Financial and Administrative Burdens of Limited Distribution Network Changes in Cystic Fibrosis
Brittany A. Wright, Cameron J. McKinzie, Charissa W. Kam, Casey R. Tak, Lynnsey M. Knockel, Julie Langhorst, Rebecca S. Pettit, Lynda Roe, Billie Simonson, Hilary Vogt, Nicole Willer, David C. Young · 2026
Read The Cost of Control: Financial and Administrative Burdens of Limited Distribution Network Changes in Cystic Fibrosis by Brittany A. Wright, Cameron J. McKinzie, Charissa W. Kam, Casey R. Tak, Lynnsey M. Knockel, Julie Langhorst, Rebecca S. Pettit, Lynda Roe, Billie Simonson, Hilary Vogt, Nicole Willer, David C. Young (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13572961.txt.
Description
Brittany Wright and eleven co-authors measure the hidden work behind cystic fibrosis drug access. Their 2026 study follows a change in the limited network that supplies key modulator drugs. Pharmacists and technicians at accredited care centers absorb the fallout of such changes. The team timed their fix-it work and tallied the costs patients avoided.
Over four months, pharmacy teams logged each tangle they triaged and resolved. The review sorts the kinds of interventions the network change forced. It also counts the money burden lifted from patients by that work. Results are scaled up to a national picture using registry numbers. The study prices the control that limited networks exert over care teams.
Catalog record
| CREATOR | Brittany A. Wright, Cameron J. McKinzie, Charissa W. Kam, Casey R. Tak, Lynnsey M. Knockel, Julie Langhorst, Rebecca S. Pettit, Lynda Roe, Billie Simonson, Hilary Vogt, Nicole Willer, David C. Young |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 17 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |