Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium
Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu · 2026
Read Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium by Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13572261.txt.
Description
Maria Isabel Cardona and co-authors argue that fairness must sit at the center of European dementia research, in a 2026 paper from the PANEUCARE consortium. Care across Europe varies widely by region, in who takes part in research, in funding, and in daily practice. The group combined expert skill with the voices of people living with dementia and their carers.
Two workshops with experts and talks with patients and carers fed one shared set of findings. Shared problems were staff shortages, late diagnosis, split care paths, and heavy carer burden. Southern and Eastern parts of Europe were left out of much research. Bright spots were local services, teamwork across sectors, and digital tools. The group turned its key aims into a framework whose initials spell EQUITABLE: fairness, quality, urgency, involvement, teamwork across fields, adaptability, budget sense, language and culture, and engagement.
Catalog record
| CREATOR | Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 43 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |