Portuguese National Cancer Registry: from local registries to high-quality nationwide real-world data
TM Garcia, A Sousa, P Leite-Silva, L Lopes-Conceição, O Godinho, MJ Bento · 2026
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Description
Garcia and five co-authors trace Portugal's cancer registry from local lists to a national data resource, in a 2026 paper. Registration began in scattered towns in 1976 and reached full coverage in 2007. Law created the unified national registry in 2017.
The national system added over 30 clinical variables beyond the old core set. In 2022 data, core facts were fully complete and lab confirmation hit 97.8 percent. Weak spots remain: stage was missing in about 40 percent of cases. Manual entry still slows publication by about three years. The registry has powered 56 studies since 2018. The authors urge automation to cut the lag.
Catalog record
| CREATOR | TM Garcia, A Sousa, P Leite-Silva, L Lopes-Conceição, O Godinho, MJ Bento |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 17 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |