Investigating the impact of chronic graft‑versus‑host disease on patient health‑related quality of life: perspectives from patients and carers
Katharina Ecsy, Luke Skinner, Martin Furze, Dawn Hart, Charlotte Sugden Heron, Amy Page, Larissa Dempsey, Adlene Adnan, Arunesh Sil, Richard D. A. Hudson, Matthew Bradberry · 2026
Read Investigating the impact of chronic graft‑versus‑host disease on patient health‑related quality of life: perspectives from patients and carers by Katharina Ecsy, Luke Skinner, Martin Furze, Dawn Hart, Charlotte Sugden Heron, Amy Page, Larissa Dempsey, Adlene Adnan, Arunesh Sil, Richard D. A. Hudson, Matthew Bradberry (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13560328.txt.
Description
Katharina Ecsy and colleagues gather patient and carer perspectives on how chronic graft-versus-host disease wears down quality of life after stem cell transplantation. Their 2026 two-part study interviews ten adults who had passed through more than two lines of therapy, then surveys twenty-seven more, including a standard quality-of-life questionnaire. Data on this heavily treated group had been thin.
Patients described a profound drag across daily life: treatment side effects, the sheer burden of regimens, constant appointments, and hits to finances, education, and mental health. Many felt unprepared for how severe and how long the symptoms would run. They asked for better communication among the several professionals treating the same person. The authors call for fuller education at the outset, treatment plans shaped to the individual, and stronger support services to soften the emotional and financial weight of the disease.
Catalog record
| CREATOR | Katharina Ecsy, Luke Skinner, Martin Furze, Dawn Hart, Charlotte Sugden Heron, Amy Page, Larissa Dempsey, Adlene Adnan, Arunesh Sil, Richard D. A. Hudson, Matthew Bradberry |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 43277 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |