Bridging the medical cliff: a paediatric–adult continuity of care model for 2,341 young adults with rare diseases in China
Yu Shi, Tianxing Feng, Xuan Gao, Jianshe Wang, Feihong Luo, Fang Liu, Ming Li, Hongsheng Wang, Qian Shen, Hao Li, Shan Zheng, Li Sun, Dahui Wang, Xiaochuan Wang, Libo Wang, Ying Huang, Yuping Qian, Junhua Tian, Ronghua Yang, Jin Fu, Gongbao Liu, Hongquan Geng, Xiaowen Zhai, Yi Wang · 2026
Read Bridging the medical cliff: a paediatric–adult continuity of care model for 2,341 young adults with rare diseases in China by Yu Shi, Tianxing Feng, Xuan Gao, Jianshe Wang, Feihong Luo, Fang Liu, Ming Li, Hongsheng Wang, Qian Shen, Hao Li, Shan Zheng, Li Sun, Dahui Wang, Xiaochuan Wang, Libo Wang, Ying Huang, Yuping Qian, Junhua Tian, Ronghua Yang, Jin Fu, Gongbao Liu, Hongquan Geng, Xiaowen Zhai, Yi Wang (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13553781.txt.
Description
Yu Shi and a large team of co-authors published a 2026 paper on a care model that bridges the gap when young people with rare diseases outgrow children's hospitals. Most rare diseases start in childhood. In China, where an estimated twenty million people live with one, few formal transition pathways exist, so patients can lose their care team and its expertise at adulthood.
The model was built at a children's hospital in Shanghai and serves 2,341 young adults. It joins pediatric and adult services into one continuity program with four parts. The authors review service data over a thirty eight month window, including the period since the model launched. They describe who the model serves and early signs that it works in practice.
Catalog record
| CREATOR | Yu Shi, Tianxing Feng, Xuan Gao, Jianshe Wang, Feihong Luo, Fang Liu, Ming Li, Hongsheng Wang, Qian Shen, Hao Li, Shan Zheng, Li Sun, Dahui Wang, Xiaochuan Wang, Libo Wang, Ying Huang, Yuping Qian, Junhua Tian, Ronghua Yang, Jin Fu, Gongbao Liu, Hongquan Geng, Xiaowen Zhai, Yi Wang |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 47 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |