A Systematic Review of Worldwide Guidelines, Protocols, and Health Care Standards for Provision of Palliative Care Services in Progressive Neurological Disorders
Jessica Kaplonyi, Samantha M Loi, Julie C Stout, Jennifer Philip, Rosalie Gebert, Anita M Y Goh · 2026
Read A Systematic Review of Worldwide Guidelines, Protocols, and Health Care Standards for Provision of Palliative Care Services in Progressive Neurological Disorders by Jessica Kaplonyi, Samantha M Loi, Julie C Stout, Jennifer Philip, Rosalie Gebert, Anita M Y Goh (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13551532.txt.
Description
Jessica Kaplonyi and co-authors gather the world's palliative care guidelines for progressive nerve diseases in a 2026 review. Conditions like dementia and Parkinson's are life-limiting with tangled courses. Families need whole-person care, including end-of-life support, yet standards vary.
The team searched databases and gray sources for guidelines from 2013 into 2026 and kept thirty-three. Quality was generally high. Most came from rich countries and centered on dementia. World Health Organization care domains were mostly covered, though spiritual wellbeing was patchy. Six themes ran through the set, from symptom relief to family partnership and value-led choices. Gaps point to where future guidelines should grow.
Catalog record
| CREATOR | Jessica Kaplonyi, Samantha M Loi, Julie C Stout, Jennifer Philip, Rosalie Gebert, Anita M Y Goh |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 66 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |