‘It Is of Course About Being Human Together’: Co‐Development of a Primary Progressive Aphasia Awareness Campaign to Enhance Understanding of Speech and Language Therapy
Anna Volkmer, Rosemary Townsend, Bethany Anthony, Sharon M. Antonucci, Petronilla Battista, Sandrine Basaglia‐Pappas, Jeanne Gallée, Stephanie Grasso, Maya L. Henry, Peter Just, Nomiki Karpathiou, Becky Khayum, Monica Lavoie, Helen Moffat, Michael Petley, Philip Robinson, Kiiya Shibata, Cathleen Tay · 2026
Read ‘It Is of Course About Being Human Together’: Co‐Development of a Primary Progressive Aphasia Awareness Campaign to Enhance Understanding of Speech and Language Therapy by Anna Volkmer, Rosemary Townsend, Bethany Anthony, Sharon M. Antonucci, Petronilla Battista, Sandrine Basaglia‐Pappas, Jeanne Gallée, Stephanie Grasso, Maya L. Henry, Peter Just, Nomiki Karpathiou, Becky Khayum, Monica Lavoie, Helen Moffat, Michael Petley, Philip Robinson, Kiiya Shibata, Cathleen Tay (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13551054.txt.
Description
Anna Volkmer and co-authors co-build an awareness drive for a rare language-led dementia with people who live with it, in a study from two thousand twenty-six. Speech therapy is the main help for primary progressive aphasia, yet few know it and referrals lag. Thirty affected people shaped the drive at a World Café event.
A ten-week drive ran across seven countries with shared posts and webinars. Webinars drew about three hundred people each on average. Guests said they learned the therapy role and prized hearing affected voices first-hand. Cost per guest in the United Kingdom came out low. Readers get a co-made model for raising rare-disease awareness.
Catalog record
| CREATOR | Anna Volkmer, Rosemary Townsend, Bethany Anthony, Sharon M. Antonucci, Petronilla Battista, Sandrine Basaglia‐Pappas, Jeanne Gallée, Stephanie Grasso, Maya L. Henry, Peter Just, Nomiki Karpathiou, Becky Khayum, Monica Lavoie, Helen Moffat, Michael Petley, Philip Robinson, Kiiya Shibata, Cathleen Tay |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 71 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |