Identifying unmet needs in food protein–induced enterocolitis syndrome using search query analysis and a large language model
Thinh H. Nguyen, Mia Vaida, Bernardo Sousa-Pinto, Thinh Doan, Danielle Crethers, Brichelle Peña, Emeline Kao, Wanda Phipatanakul, Erin Syverson, Elena Crestani, Lisa M. Bartnikas · 2026
Read Identifying unmet needs in food protein–induced enterocolitis syndrome using search query analysis and a large language model by Thinh H. Nguyen, Mia Vaida, Bernardo Sousa-Pinto, Thinh Doan, Danielle Crethers, Brichelle Peña, Emeline Kao, Wanda Phipatanakul, Erin Syverson, Elena Crestani, Lisa M. Bartnikas (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13544177.txt.
Description
Thinh Nguyen and a large team of co-authors used search data and a language model to find unmet needs in a rare food allergy, in a 2026 paper. The condition makes the gut react badly to certain food proteins in young children. Families often lack clear answers to common questions. The team wanted a data-led way to surface those questions.
They gathered two years of search trend data for the condition in the United States. A language model turned search terms into ten questions that reflect public interest. Parents from a hospital registry then rated the questions. Nearly all questions were rated important by most parents. Handling reactions and outgrowing the condition were hardest to find answers for. The authors offer their frame for building patient advice in rare diseases.
Catalog record
| CREATOR | Thinh H. Nguyen, Mia Vaida, Bernardo Sousa-Pinto, Thinh Doan, Danielle Crethers, Brichelle Peña, Emeline Kao, Wanda Phipatanakul, Erin Syverson, Elena Crestani, Lisa M. Bartnikas |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 35 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |