Patient and Public Involvement and Engagement in Pediatric Health Research: A Systematic Review
Veronika Stadler, Rebeca Mozun, Jannik Strohm, SwissPedHealth consortium, Chloé Caruso, Klara M. Posfay‐Barbe, Cornelia Hagmann · 2026
Read Patient and Public Involvement and Engagement in Pediatric Health Research: A Systematic Review by Veronika Stadler, Rebeca Mozun, Jannik Strohm, SwissPedHealth consortium, Chloé Caruso, Klara M. Posfay‐Barbe, Cornelia Hagmann (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13543670.txt.
Description
Veronika Stadler's team reviewed patient and public involvement in children's health research, asking how young patients and families are brought into studies. Their search of four databases found thirty-seven papers on thirty-five studies published between 2003 and 2024, and reporting quality was checked against a standard short checklist. Involvement was mapped by who took part, at which research stages, and with what effects.
Children, adolescents, and caregivers were the usual contributors, most often at the design stage, in nearly nine of ten studies, and in recruitment in about half. Teams said involvement brought better recruitment and retention, and those taking part reported personal benefits. The barriers were money, time, and finding representative voices, while the depth of involvement and the quality of its write-ups varied widely. The authors urge fuller use of the reporting guide so others can learn from each project.
Catalog record
| CREATOR | Veronika Stadler, Rebeca Mozun, Jannik Strohm, SwissPedHealth consortium, Chloé Caruso, Klara M. Posfay‐Barbe, Cornelia Hagmann |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 36 KB |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |