Co‐Design of Strategies to Support the Implementation of a Paediatric Risk‐Reduction Pathway for Familial Hypercholesterolaemia
Mitchell Sarkies, Shubha Srinivasan, Ari Horton, Jacquie Garton‐Smith, Gerald F Watts, Christine Tawtel, Jenny Della‐Vedova, Kristen J Nowak, Jing Pang, Andrew Martin · 2026
Read Co‐Design of Strategies to Support the Implementation of a Paediatric Risk‐Reduction Pathway for Familial Hypercholesterolaemia by Mitchell Sarkies, Shubha Srinivasan, Ari Horton, Jacquie Garton‐Smith, Gerald F Watts, Christine Tawtel, Jenny Della‐Vedova, Kristen J Nowak, Jing Pang, Andrew Martin (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13480714.txt.
Description
Mitchell Sarkies and nine colleagues co-designed in 2026 strategies to roll out a childhood cholesterol risk pathway in Australia. Familial hypercholesterolaemia affects about 1 in 311 people, yet detection and care for children remain weak despite early treatment guidelines.
Two workshops with clinical, policy, and advocacy voices surfaced barriers such as murky roles, shaky clinician trust, and patchy access to dietary advice, plus helpers such as family power and engaged champions. Nine strategies emerged, from guidance letters and phone coordination to patient passports, reimbursement, diet resources, and audit feedback. The package aims to make shared care routine, earlier detection real, and the model portable to other childhood lipid disorders.
Catalog record
| CREATOR | Mitchell Sarkies, Shubha Srinivasan, Ari Horton, Jacquie Garton‐Smith, Gerald F Watts, Christine Tawtel, Jenny Della‐Vedova, Kristen J Nowak, Jing Pang, Andrew Martin |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 40 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |