Characterizing Populations Based on Proximity to a Fragile X Syndrome Specialty Clinic
Hidayat Y Ogunsola, April D Summers, Maria G Gonzalez, Angela M Thompson-Paul, Marc Schweizer, Robert M Miller, Hilary Rosselot, Sarah C Tinker · 2026
Read Characterizing Populations Based on Proximity to a Fragile X Syndrome Specialty Clinic by Hidayat Y Ogunsola, April D Summers, Maria G Gonzalez, Angela M Thompson-Paul, Marc Schweizer, Robert M Miller, Hilary Rosselot, Sarah C Tinker (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13479729.txt.
Description
Hidayat Ogunsola and co-authors map who in the United States lives near a specialty clinic for fragile X syndrome, a lifelong genetic condition. Their study appeared in 2026. Using census tracts and drive-time software, they found only about thirty-six percent of the mainland population lives within an hour of a clinic in its own state. A quarter lives in a state with no clinic at all. People far from clinics were more often poor, disabled, and offline at home.
Those near clinics more often spoke limited English and lacked a car, a different kind of barrier. The authors say the map shows where need concentrates, so outreach, telehealth, and new clinic sites can be aimed rather than guessed.
Catalog record
| CREATOR | Hidayat Y Ogunsola, April D Summers, Maria G Gonzalez, Angela M Thompson-Paul, Marc Schweizer, Robert M Miller, Hilary Rosselot, Sarah C Tinker |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 28 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |