Update on clinimetric assessments in juvenile dermatomyositis: conceptual foundations, current tools, and future directions
Charalampia Papadopoulou, Brian M. Feldman · 2026
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Description
Papadopoulou and Feldman review how doctors measure disease in juvenile dermatomyositis, a childhood autoimmune disease attacking muscle and skin, and where the toolbox still falls short. Their 2026 update walks through strength scales, skin scores, composite indices, imaging, and patient-reported outcomes built over decades of international work.
Single lab values mislead: more than 20% of children show normal muscle enzyme levels at diagnosis, and enzymes can normalize on steroids while disease stays active. Skin scores carry real meaning, since roughly 40% improvement in the CDASI activity score tracks meaningful quality-of-life gains for patients. The authors' stated goal is one simple unified tool capturing every important health domain, built with strong patient input.
Catalog record
| CREATOR | Charalampia Papadopoulou, Brian M. Feldman |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 31 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |