Care Coordination Experiences of Whole Families Caring for Children With Medical Complexity in Rural Areas
Anneliese de Groot, Karen Hutchinson, Amy Hickman, Raghu Lingam, Jeffery Fletcher, Hayley Smithers‐Sheedy, Yvonne Zurynski · 2026
Read Care Coordination Experiences of Whole Families Caring for Children With Medical Complexity in Rural Areas by Anneliese de Groot, Karen Hutchinson, Amy Hickman, Raghu Lingam, Jeffery Fletcher, Hayley Smithers‐Sheedy, Yvonne Zurynski (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13431284.txt.
Description
de Groot and colleagues listen to whole families, not just mothers, about caring for children with medical complexity who live in rural Australia. Such children may see as many as fifteen specialists, and distance makes every appointment a project. Their 2026 study interviews members of thirteen families who receive a nurse delivered coordination service. The members are twelve mothers, seven fathers, three siblings, two of the children themselves, and an aunt. Views are compared within and across families.
Five themes emerged, covering family variety, coordination that builds on family strengths, the grind of reaching care from the country, whole family impact, and quality care closer to home. Caring strained money, relationships, and the health of parents and siblings alike, while good coordination eased the load and kept care local. Future service reviews, the authors argue, should always ask fathers, siblings, and the children too.
Catalog record
| CREATOR | Anneliese de Groot, Karen Hutchinson, Amy Hickman, Raghu Lingam, Jeffery Fletcher, Hayley Smithers‐Sheedy, Yvonne Zurynski |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 59 KB |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |