Participatory System Mapping of a Hospice Care System With Hospice Stakeholders: Hybrid Design Workshop Study
Andrew Tibbles, Farnaz Nickpour, Amy Price · 2026
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Description
Andrew Tibbles, Farnaz Nickpour, and Amy Price ran participatory system-mapping workshops with everyone who makes a hospice run, in a 2026 study from a hospice in North West England. Twenty-seven participants, patients, clinicians, volunteers, managers, maintenance staff, and chaplaincy, learned causal loop diagramming. They then mapped what drives quality of hospice experience, working both in person and asynchronously in a hybrid design.
The consolidated map held 84 variables joined by 175 causal links. Network analysis picked out the load-bearing nodes: patient experience attracted the most incoming links, advanced care planning sent out the most, and fundraising sat on the most paths between other factors. The authors judge the method feasible and fruitful, producing a stakeholder-owned picture of the system plus candidate leverage points. They call for replication in other palliative settings before acting on the map.
Catalog record
| CREATOR | Andrew Tibbles, Farnaz Nickpour, Amy Price |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 53195 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |