“We do what needs to be done”: caregivers’ experiences of healthcare and support for people with multiple long-term conditions in the last year of life
Sarah P Bowers, Ellen Kerr, Eilish Murphy, Jillian Galbraith, Colin McIntyre, Margaret C Weir, Maureen Ward, Sarah E E Mills, Linda Williams, Jo Bowden, Frances Quirk · 2026
Read “We do what needs to be done”: caregivers’ experiences of healthcare and support for people with multiple long-term conditions in the last year of life by Sarah P Bowers, Ellen Kerr, Eilish Murphy, Jillian Galbraith, Colin McIntyre, Margaret C Weir, Maureen Ward, Sarah E E Mills, Linda Williams, Jo Bowden, Frances Quirk (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13393848.txt.
Description
Sarah P Bowers and colleagues listen to bereaved caregivers of people with multiple long-term conditions in a 2026 qualitative study. Near the end of life, patients face unclear illness paths and tangled uncertainty, and family or friend caregivers carry much of the coordination.
Using interpretative phenomenological analysis of interviews with 12 bereaved caregivers, plus input from public advisors with caregiving experience, the team identified five shared experiential themes. The paper gives voice to the unpaid work of doing what needs doing, and it points services toward support that matches caregivers' real burdens.
Catalog record
| CREATOR | Sarah P Bowers, Ellen Kerr, Eilish Murphy, Jillian Galbraith, Colin McIntyre, Margaret C Weir, Maureen Ward, Sarah E E Mills, Linda Williams, Jo Bowden, Frances Quirk |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 58 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |