The Uncertainty in Illness Questionnaire (UIQ): development and validation of a clinically oriented measure for patients and caregivers
Anna Panzeri, Marta Ghisi, Alessandro Alberto Rossi, Andrea Spoto, Giulio Vidotto, Gioia Bottesi · 2026
Read The Uncertainty in Illness Questionnaire (UIQ): development and validation of a clinically oriented measure for patients and caregivers by Anna Panzeri, Marta Ghisi, Alessandro Alberto Rossi, Andrea Spoto, Giulio Vidotto, Gioia Bottesi (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13393619.txt.
Description
Anna Panzeri and five co-authors build a questionnaire that measures how uncertain illness feels, in a 2026 paper. Not knowing what symptoms mean, whether treatment works, or what comes next is itself a burden for patients and caregivers. Their Uncertainty in Illness Questionnaire was developed for Italian speakers and tested across three studies in large, varied samples. A modern graph analysis first explored its structure.
Four factors emerged: uncertainty about symptoms, about treatments, about future change, and about relationships. A second study confirmed the structure, with strong stability and clean separation between factors. A clinically oriented tool like this lets care teams spot which kind of not-knowing hurts a family most, and answer that one first.
Catalog record
| CREATOR | Anna Panzeri, Marta Ghisi, Alessandro Alberto Rossi, Andrea Spoto, Giulio Vidotto, Gioia Bottesi |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 65 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |