A Survey-Based Study Investigating Opinions on Genetic Research Among Swedish Autistic Individuals and Parents of Autistic Children
Samuelle Fajutrao Falk, Anna Hellquist, Kristiina Tammimies · 2026
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Description
Samuelle Fajutrao Falk, Anna Hellquist, and Kristiina Tammimies survey, in 2026, Swedish autistic people and parents of autistic children about genetic research. Community opinion will shape the future of autism genetics, yet it is seldom measured directly at national scale.
Two online surveys, one for parents and one for autistic adolescents and adults, drew hundreds of parents and more than two hundred autistic respondents. Attitudes were generally positive, with both groups hoping research yields better interventions and quality of life, alongside stated expectations and concerns. Genetic researchers gain a mandate check: support exists, tied to clear hopes and boundaries that study design should respect.
Catalog record
| CREATOR | Samuelle Fajutrao Falk, Anna Hellquist, Kristiina Tammimies |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 48552 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |