Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada
Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Hanns Lochmuller, Craig Campbell, Jean K. Mah · 2026
Read Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada by Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Hanns Lochmuller, Craig Campbell, Jean K. Mah (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13390125.txt.
Description
Kerri Lynn Schellenberg's team reports on building a Canada medical trial network for nerve-muscle ills, where small patient numbers, wide spread, varied forms, and thin base make trials hard. Rare ills affect over three hundred million people worldwide, and nerve-muscle disorders show the hurdles.
A talk-based needs review with trial leads and trial staff across Canada found heavy do-ability steps, workforce gaps, poor trial profile, and split teamwork. The network's early answers include single do-ability sorting, a national community of practice, coaching, and links to patient lists. They target those gaps head-on to improve trial prep and access.
Catalog record
| CREATOR | Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Hanns Lochmuller, Craig Campbell, Jean K. Mah |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 46 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |