Quality of life and research benefit and burden in siblings of children with life-limiting conditions: a prospective multicentre cohort study
Anne-Kathrin Gerber, Karin Zimmermann, Michèle Widler, Michael Simon, Nicolas von der Weid, Stefan Mitterer, Eva Bergsträsser · 2026
Read Quality of life and research benefit and burden in siblings of children with life-limiting conditions: a prospective multicentre cohort study by Anne-Kathrin Gerber, Karin Zimmermann, Michèle Widler, Michael Simon, Nicolas von der Weid, Stefan Mitterer, Eva Bergsträsser (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13385311.txt.
Description
Anne-Kathrin Gerber and co-authors follow brothers and sisters of children whose illness will cut life short. Such siblings can face strain at home and lower well-being, yet few studies track them over time. Their 2026 study was run at three Swiss children's hospitals. It asks how the siblings' quality of life shifts through care and loss, and how they judge taking part in research.
Twelve siblings aged eight to eighteen took part and filled in forms at set points. Their quality of life scores beat Swiss norms in most areas, though not for mood and well-being. Scores moved up and down for each child over time. The load of taking part in the study was low. The authors urge care teams to screen siblings and back those who struggle.
Catalog record
| CREATOR | Anne-Kathrin Gerber, Karin Zimmermann, Michèle Widler, Michael Simon, Nicolas von der Weid, Stefan Mitterer, Eva Bergsträsser |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 35 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |