Developing a patient-educator program for adolescents with juvenile arthritis: exploring motivation sources, barriers, and facilitators
Marie-Paule Morin, Aimun Qadeer Shah, Maria Mylopoulos, Marie-Pascale Pomey, François Bowen, Lawrence Grierson, Claude Julie Bourque · 2025
Read Developing a patient-educator program for adolescents with juvenile arthritis: exploring motivation sources, barriers, and facilitators by Marie-Paule Morin, Aimun Qadeer Shah, Maria Mylopoulos, Marie-Pascale Pomey, François Bowen, Lawrence Grierson, Claude Julie Bourque (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13355001.txt.
Description
Marie-Paule Morin and co-authors interviewed teens with juvenile arthritis in 2025 about teaching medical students as patient-educators. Adult patients often help teach, but teens rarely do, even for child health topics. Nineteen patients aged 13 to 18 at two Canadian children's centers shared what would draw them in or hold them back.
Teens said they wanted to learn about their own illness, meet peers, help students learn, and raise awareness. School load, travel, and shyness about sharing in big groups were the main blocks. Parent support, volunteer hours, and having health staff in sessions would help. The findings guide how to build lasting teen educator programs.
Catalog record
| CREATOR | Marie-Paule Morin, Aimun Qadeer Shah, Maria Mylopoulos, Marie-Pascale Pomey, François Bowen, Lawrence Grierson, Claude Julie Bourque |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 24834 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |