Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of health care transition planning literature

Jennifer Emilie Mannino, Cara C. Young, Monique M. Ridosh, Kristin Cleverley, Lin Li, Lynn Kysh, Catherine A. Harwood, Brooke Allemang, Linda Tirabassi-Mathis, Sharon Hudson, Stephanie M. Key, Benjamin C. Schwartzman, Jihye Lee, Manu S. Raam, Cecily L. Betz · 2026

Read Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of health care transition planning literature by Jennifer Emilie Mannino, Cara C. Young, Monique M. Ridosh, Kristin Cleverley, Lin Li, Lynn Kysh, Catherine A. Harwood, Brooke Allemang, Linda Tirabassi-Mathis, Sharon Hudson, Stephanie M. Key, Benjamin C. Schwartzman, Jihye Lee, Manu S. Raam, Cecily L. Betz (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13329513.txt.

Description

Jennifer Emilie Mannino and a large team map research on self-management during the move from child to adult care in a 2026 scoping review. About 1.2 million young people with long-term conditions from childhood enter adulthood each year in the United States, the authors note. Gaps in care can follow if young people cannot manage their own health.

Searches of six databases up to November 2024 yielded 640 included articles, spanning 1989 to April 2025. Most work appeared after 2014 and came from the United States. Cross-sectional and number-based designs dominated. Only 89 studies tested an intervention. Most focused on physical conditions. The review shows where evidence is thick and where trials are still scarce.

Catalog record

CREATORJennifer Emilie Mannino, Cara C. Young, Monique M. Ridosh, Kristin Cleverley, Lin Li, Lynn Kysh, Catherine A. Harwood, Brooke Allemang, Linda Tirabassi-Mathis, Sharon Hudson, Stephanie M. Key, Benjamin C. Schwartzman, Jihye Lee, Manu S. Raam, Cecily L. Betz
YEAR2026
COLLECTIONPAPERS
FORMATTXT
FILE SIZE48244
LICENSEhttps://creativecommons.org/licenses/by/4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/article/MED/PMC13329513

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