Engagement with the national electronic health records by people with Parkinson's disease
Marijus Giraitis, Isabel Schwaninger, Ivana Paccoud, Messaline Fomo, Patricia Martins Conde, Evi Wollscheid-Lengeling, Bjoern Eskofier, John Torous, Rejko Krüger, Jochen Klucken · 2026
Read Engagement with the national electronic health records by people with Parkinson's disease by Marijus Giraitis, Isabel Schwaninger, Ivana Paccoud, Messaline Fomo, Patricia Martins Conde, Evi Wollscheid-Lengeling, Bjoern Eskofier, John Torous, Rejko Krüger, Jochen Klucken (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13312789.txt.
Description
Marijus Giraitis and colleagues survey, in a 2026 cross-sectional study, how people with Parkinson's disease in Luxembourg use the national electronic health record. Parkinson's care spans many specialists, so a shared record could coordinate treatment and support self-management. The researchers questioned 191 patients using validated digital literacy and health information instruments. They then modeled which patient, provider, and technology factors predicted engagement.
Use was low. In the past year, only 29.8 percent had opened their record repeatedly. Most had not used it at all: 70.2 percent, including 40.8 percent who had never accessed it since launch. Engagement ran higher among patients born in Luxembourg, those with milder disease, and those with stronger digital health literacy. Active encouragement from their clinicians also helped. Surprisingly, greater trust in providers and higher general health literacy predicted less use. The authors call for broad fixes so digital records do not exclude the patients who need coordination most.
Catalog record
| CREATOR | Marijus Giraitis, Isabel Schwaninger, Ivana Paccoud, Messaline Fomo, Patricia Martins Conde, Evi Wollscheid-Lengeling, Bjoern Eskofier, John Torous, Rejko Krüger, Jochen Klucken |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 49 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |