Treatment preferences of people with hemophilia and caregivers: a plain language summary

Hui Lu, Travis Gould, Carmine Colavecchia, Joshua Coulter, Lisa J. Wilcox, Joseph C. Cappelleri, Stephanie A. Christopher, Brett Hauber, Álvaro Alberto Gutiérrez-Vargas, Nicola Dunn, Pratima Chowdary, Jennifer A. Whitty · 2026

Read Treatment preferences of people with hemophilia and caregivers: a plain language summary by Hui Lu, Travis Gould, Carmine Colavecchia, Joshua Coulter, Lisa J. Wilcox, Joseph C. Cappelleri, Stephanie A. Christopher, Brett Hauber, Álvaro Alberto Gutiérrez-Vargas, Nicola Dunn, Pratima Chowdary, Jennifer A. Whitty (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13305631.txt.

Description

Hui Lu and co-authors offer a 2026 plain language summary of a survey on treatment preferences in hemophilia care. People with the bleeding condition and caregivers of affected children in the United States and United Kingdom weighed made-up treatment options online.

Choices varied benefits, risks, and delivery style, from vein injections to newer under-skin shots. Adults and caregivers mostly agreed on what mattered. Taking treatment less often ranked highest of all features. Respondents would accept somewhat higher risk or lower benefit in exchange for fewer doses, a trade-off that drug makers and clinics should weigh when planning care.

Catalog record

CREATORHui Lu, Travis Gould, Carmine Colavecchia, Joshua Coulter, Lisa J. Wilcox, Joseph C. Cappelleri, Stephanie A. Christopher, Brett Hauber, Álvaro Alberto Gutiérrez-Vargas, Nicola Dunn, Pratima Chowdary, Jennifer A. Whitty
YEAR2026
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2647
LICENSEhttps://creativecommons.org/licenses/by/4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/article/MED/PMC13305631

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