Understanding how informal dementia caregiver networks are assessed in the literature: results from a scoping review
Noelle E. Carlozzi, Wendy L. Lombard, Madison Fansher, Jacqueline L. Freeman, Emily Capellari, Christopher M. Graves, Jennifer A. Miner, Benjamin M. Hampstead, Jin-Shei Lai, Amanda N. Leggett · 2026
Read Understanding how informal dementia caregiver networks are assessed in the literature: results from a scoping review by Noelle E. Carlozzi, Wendy L. Lombard, Madison Fansher, Jacqueline L. Freeman, Emily Capellari, Christopher M. Graves, Jennifer A. Miner, Benjamin M. Hampstead, Jin-Shei Lai, Amanda N. Leggett (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13303008.txt.
Description
Studies of dementia care networks measure them in wildly mixed ways, Noelle E. Carlozzi and colleagues conclude in a 2026 scoping review. Sifting over fourteen thousand papers yielded 197 studies that defined or measured the unpaid care webs around people with dementia: kin, friends, and others who help. The team listed the tools used and the facts most often gathered.
Only nineteen studies used a tested, standard tool; the rest made up their own, and thirteen standard tools saw use once or twice each. Seven facts came up again and again, led by whether a backup helper exists and how much help each person gives. The authors call for shared, tested measures.
Catalog record
| CREATOR | Noelle E. Carlozzi, Wendy L. Lombard, Madison Fansher, Jacqueline L. Freeman, Emily Capellari, Christopher M. Graves, Jennifer A. Miner, Benjamin M. Hampstead, Jin-Shei Lai, Amanda N. Leggett |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 30518 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |