Implementation of a Prospective Birth Cohort for Newborn Screening and Early Linkage to Comprehensive Sickle Cell Disease Care in a Low-Resource Setting
Umma A. Ibrahim, Aisha B. Musa, Oiza O. Aliu-Isah, Hauwa A. Inuwa, Zubaida L. Farouk, Khadija Bulama, Aisha Mukaddas, Khadija Kamal, Rifkatu N. Auta, Nafiu Hussaini, Aisha A. Galadanci, Yusuf D. Jobbi, Bilya S. Musa, Yvonne Carroll, Lauren J. Klein, Ibrahim M. Idris, Michael R. DeBaun, Muktar H. Aliyu · 2026
Read Implementation of a Prospective Birth Cohort for Newborn Screening and Early Linkage to Comprehensive Sickle Cell Disease Care in a Low-Resource Setting by Umma A. Ibrahim, Aisha B. Musa, Oiza O. Aliu-Isah, Hauwa A. Inuwa, Zubaida L. Farouk, Khadija Bulama, Aisha Mukaddas, Khadija Kamal, Rifkatu N. Auta, Nafiu Hussaini, Aisha A. Galadanci, Yusuf D. Jobbi, Bilya S. Musa, Yvonne Carroll, Lauren J. Klein, Ibrahim M. Idris, Michael R. DeBaun, Muktar H. Aliyu (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13300708.txt.
Description
Screening newborns only helps if families return for care, and Umma A. Ibrahim and colleagues report a 2026 implementation study from Kano, Nigeria. At Aminu Kano Teaching Hospital, two sequential cohorts tested whether sickle cell screening could link babies into full care before three months of age. A family-centered communication plan was added after a weak first round.
In the first period, 277 newborns enrolled but only 46.5 percent arrived early, though babies with sickle cell disease did better at 72.8 percent. After staff adopted structured family outreach and tracking, early enrollment jumped to 91.7 percent among sixty more babies. Cheap communication fixes, the authors conclude, can close the follow-up gap.
Catalog record
| CREATOR | Umma A. Ibrahim, Aisha B. Musa, Oiza O. Aliu-Isah, Hauwa A. Inuwa, Zubaida L. Farouk, Khadija Bulama, Aisha Mukaddas, Khadija Kamal, Rifkatu N. Auta, Nafiu Hussaini, Aisha A. Galadanci, Yusuf D. Jobbi, Bilya S. Musa, Yvonne Carroll, Lauren J. Klein, Ibrahim M. Idris, Michael R. DeBaun, Muktar H. Aliyu |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 32098 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |