Family or caregiver outcomes after critical illness (FOCUS): a protocol for a core outcome set development study
Claire Brown, Peter Hartley, Alexandra Malyon, Bronwen Connolly, Nazir I Lone, Joanne McPeake · 2026
Read Family or caregiver outcomes after critical illness (FOCUS): a protocol for a core outcome set development study by Claire Brown, Peter Hartley, Alexandra Malyon, Bronwen Connolly, Nazir I Lone, Joanne McPeake (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13295962.txt.
Description
Claire Brown and colleagues outline a 2026 protocol to agree a core set of outcomes for families of people who survive critical illness. Relatives often face months of strain on their health and daily life, yet trials measure that burden in scattered ways.
The FOCUS study will use interviews, repeated Delphi surveys and a consensus meeting with researchers, clinicians, survivors and caregivers. The goal is a short agreed list of outcomes every trial in this area should record. The authors say a shared set would make future studies easier to compare and more useful to families.
Catalog record
| CREATOR | Claire Brown, Peter Hartley, Alexandra Malyon, Bronwen Connolly, Nazir I Lone, Joanne McPeake |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 21787 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |