Development and content validation of a survey assessing domains of sexual and reproductive health in adults with spina bifida
Betsy Hopson, Ching Man Carmen Tong, Courtney Streur, Brandon G Rocque, Jeffrey Blount, Nataliya Ivankova, Donald H Lein · 2025
Read Development and content validation of a survey assessing domains of sexual and reproductive health in adults with spina bifida by Betsy Hopson, Ching Man Carmen Tong, Courtney Streur, Brandon G Rocque, Jeffrey Blount, Nataliya Ivankova, Donald H Lein (2025) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13292634.txt.
Description
Betsy Hopson and co-authors describe in 2024 the building and validation of a survey on sexual and reproductive health in adults with spina bifida. The text's own year is 2024, though the catalog lists 2025. Adults with the condition face gaps in such health knowledge and care, the authors note.
The survey covers five health domains plus confidence in managing one's own care. National experts refined one hundred items over three Delphi rounds. Five adults with spina bifida then tested the wording in interviews. The final tool aims to track knowledge and self-efficacy reliably in this population over time.
Catalog record
| CREATOR | Betsy Hopson, Ching Man Carmen Tong, Courtney Streur, Brandon G Rocque, Jeffrey Blount, Nataliya Ivankova, Donald H Lein |
|---|---|
| YEAR | 2025 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 32 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |