Patient Perspectives on Palliative Care in Pulmonary Arterial Hypertension in the United States
Karim El‐Kersh, Rebecca Crawford, Hilary DuBrock, Peter Classi, Phuong Phan, Lori McLeod, Benjamin Wu, Denise Sese · 2026
Read Patient Perspectives on Palliative Care in Pulmonary Arterial Hypertension in the United States by Karim El‐Kersh, Rebecca Crawford, Hilary DuBrock, Peter Classi, Phuong Phan, Lori McLeod, Benjamin Wu, Denise Sese (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13292157.txt.
Description
Karim El-Kersh and co-authors surveyed a 2026 patient group on palliative care in pulmonary arterial hypertension, a serious lung vessel disease. Palliative care can run alongside disease treatment to ease symptoms, yet it is rarely offered and often misunderstood. The web survey, shaped by patients and clinicians, reached 200 adults across 42 states in autumn 2023.
Most respondents were women, with a mean age of 58.5 years among them. A quarter described palliative care simply as end-of-life care, and over half linked it with needing extra support. Fully 85.5 percent had never discussed palliative services with their provider, and most of those were never offered a consultation. Still, 88.5 percent felt comfortable raising the topic, so the authors urge clinicians to start the conversation.
Catalog record
| CREATOR | Karim El‐Kersh, Rebecca Crawford, Hilary DuBrock, Peter Classi, Phuong Phan, Lori McLeod, Benjamin Wu, Denise Sese |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 38604 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |