Digital Intervention for Electronic Patient-Reported Outcomes in Advanced Cancer: Mixed Methods Study
Christina Sauer, Simeon Sauer, Elena Sophia Doll, Stefanie Zschäbitz, Jan Simon Raue, Maik Turni, Till Johannes Bugaj, Kiriaki Hiller, Imad Maatouk · 2026
Read Digital Intervention for Electronic Patient-Reported Outcomes in Advanced Cancer: Mixed Methods Study by Christina Sauer, Simeon Sauer, Elena Sophia Doll, Stefanie Zschäbitz, Jan Simon Raue, Maik Turni, Till Johannes Bugaj, Kiriaki Hiller, Imad Maatouk (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13278620.txt.
Description
Christina Sauer leads a 2026 mixed methods study of a cancer care app called SOFIA, tested with patients including those in palliative care. The app combines symptom self-reports that patients enter electronically with a coaching component. Interviews at two points in a twelve-week period were paired with app usage data from active users.
Patients valued feeling empowered, supported, and able to communicate better with doctors through the symptom reports. They criticized a rigid design and doctors making too little use of the data. Half of active users read articles, most started guided journeys, and just under half completed exercises. Intuitive design, relevant symptom items, and reliable reminders are the design lessons drawn.
Catalog record
| CREATOR | Christina Sauer, Simeon Sauer, Elena Sophia Doll, Stefanie Zschäbitz, Jan Simon Raue, Maik Turni, Till Johannes Bugaj, Kiriaki Hiller, Imad Maatouk |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 46352 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |