Development of a Patient Journey Map for Metabolic Dysfunction–Associated Steatohepatitis: A Comprehensive Assessment of the Patient Journey in North America
David O. Garcia, Roberto A. Calle, Abhinav Seth, Thomas D. Norton, David J. Lederer, Angela Richardson, Jennifer Berg, Michael Betel, Henry Chang, Heidi Daniels, Wayne Eskridge, Jeff McIntyre, Gina Villiotti Madison, Tony Villiotti, Rosemarie Sellati · 2026
Read Development of a Patient Journey Map for Metabolic Dysfunction–Associated Steatohepatitis: A Comprehensive Assessment of the Patient Journey in North America by David O. Garcia, Roberto A. Calle, Abhinav Seth, Thomas D. Norton, David J. Lederer, Angela Richardson, Jennifer Berg, Michael Betel, Henry Chang, Heidi Daniels, Wayne Eskridge, Jeff McIntyre, Gina Villiotti Madison, Tony Villiotti, Rosemarie Sellati (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13276217.txt.
Description
David Garcia and co-authors present a 2026 journal article mapping the patient journey in a serious liver disease. The disease, shortened to MASH, is liver inflammation tied to metabolic problems like obesity and diabetes. It often advances silently, so diagnosis and care arrive late and unevenly.
The team built the journey map with help from eight patient advocates and one person living with MASH. Together they traced the path from first symptoms through diagnosis, specialist care, and daily life. Gaps appeared in symptom management, communication with doctors, timely diagnosis, and coordination between specialists. Caregivers' burden was poorly understood too. Burdens fell hardest on people with severe disease, and especially on Hispanic and Latino patients. The authors offer the map as a tool to target fixes.
Catalog record
| CREATOR | David O. Garcia, Roberto A. Calle, Abhinav Seth, Thomas D. Norton, David J. Lederer, Angela Richardson, Jennifer Berg, Michael Betel, Henry Chang, Heidi Daniels, Wayne Eskridge, Jeff McIntyre, Gina Villiotti Madison, Tony Villiotti, Rosemarie Sellati |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 33798 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |