“I feel like there’s going to have to be catastrophe before I am seen:..and that is going to be devastating”: Visibility, recognition, and medical silencing in eating disorders and disordered eating
Hannah Healey, Claudia Susana Caxaj, Elysée Nouvet · 2026
Read “I feel like there’s going to have to be catastrophe before I am seen:..and that is going to be devastating”: Visibility, recognition, and medical silencing in eating disorders and disordered eating by Hannah Healey, Claudia Susana Caxaj, Elysée Nouvet (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13274819.txt.
Description
Hannah Healey, Claudia Susana Caxaj, and Elysée Nouvet present a 2026 qualitative journal article on who gets recognized as having an eating disorder. Beyond clinic wait lists, the authors argue, people face symbolic barriers: being disbelieved, misread, or ruled out by narrow ideas of what these illnesses look like. They used narrative methods informed by lived experience.
One theme ran through the accounts, summed up as 'Who Gets Seen.' Participants described struggling for legitimacy, being seen, misread, or overlooked by family, friends, and clinicians, and learning to recognize their own illness. The authors frame this as epistemic injustice, where a person's credibility is unfairly discounted. They urge reimagining who counts as deserving of care.
Catalog record
| CREATOR | Hannah Healey, Claudia Susana Caxaj, Elysée Nouvet |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 60079 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |