Awareness of Duchenne muscular dystrophy among medical staff in China: a multicenter cross-sectional survey
Chun Zhai, Jun Wang, Bing Xia, Ying Guo, Yi Zhang, Yu Jiao, Xiao Juan Shi, Hui Li, Hao Zhou · 2026
Read Awareness of Duchenne muscular dystrophy among medical staff in China: a multicenter cross-sectional survey by Chun Zhai, Jun Wang, Bing Xia, Ying Guo, Yi Zhang, Yu Jiao, Xiao Juan Shi, Hui Li, Hao Zhou (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13253694.txt.
Description
Chun Zhai and colleagues survey what frontline medical staff in China know about Duchenne muscular dystrophy in a 2026 multicenter study. This progressive muscle disease needs lifelong, coordinated care, and new gene-based therapies are raising the stakes for early recognition. The team circulated a structured survey through a national rare disease alliance.
Of 510 surveys distributed, 496 valid responses came back from general, maternal-child, and pediatric hospitals. Overall awareness of the disease scored 54.64 percent, but the profile was uneven: staff knew treatment best, diagnosis less well, and policy worst at 42.74 percent of the possible score. Occupation, education, and years of experience each predicted awareness, with nurses scoring below physicians and technicians. The authors say the sharpest gaps concern genetic diagnosis and orphan drug policy. They call for targeted training for nursing staff to build the mixed teams the genomic therapy era will require.
Catalog record
| CREATOR | Chun Zhai, Jun Wang, Bing Xia, Ying Guo, Yi Zhang, Yu Jiao, Xiao Juan Shi, Hui Li, Hao Zhou |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 31 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |