Partnering with people with lived experience in eating disorder research: conceptual and practical considerations
Rosiel Elwyn, Kai Schweizer, Laurence Cobbaert, Alana Gall, Zyana Gall, Mia L Pellizzer, Jeannie Park, Matthew Jackman · 2026
Read Partnering with people with lived experience in eating disorder research: conceptual and practical considerations by Rosiel Elwyn, Kai Schweizer, Laurence Cobbaert, Alana Gall, Zyana Gall, Mia L Pellizzer, Jeannie Park, Matthew Jackman (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/PMC13251171.txt.
Description
Rosiel Elwyn and a team of lived-experience researchers set out partnership principles for eating disorder research in this 2026 article. Working with people who have lived through an eating disorder is now seen as an ethical must in health research, but this field has lagged and lacks guidance.
The authors list eight principles, from treating lived experience as expertise to sharing power, paying people fairly, and keeping working methods emotionally safe. They also explain involvement types, such as research led by lived-experience experts, co-production, co-design, and consultation. Practical advice covers roles, disclosure choices, authorship, and dealing with institutional barriers to real partnership.
Catalog record
| CREATOR | Rosiel Elwyn, Kai Schweizer, Laurence Cobbaert, Alana Gall, Zyana Gall, Mia L Pellizzer, Jeannie Park, Matthew Jackman |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 85429 |
| LICENSE | https://creativecommons.org/licenses/by/4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |