A global multilingual cocreation of aphasia priority topics through patient and public involvement
Jean Marie Annoni, Marina Charalambous, Jernej Sluga, Clotilde Marteel, Javier Gil, Reto Strähler, Fanni Eckhardt, Colin Lyall, Davide Crovetti, Hanka Mayhew, Alexia Kountouri, Claire Bennington, Silvia Rubio · 2026
Read A global multilingual cocreation of aphasia priority topics through patient and public involvement by Jean Marie Annoni, Marina Charalambous, Jernej Sluga, Clotilde Marteel, Javier Gil, Reto Strähler, Fanni Eckhardt, Colin Lyall, Davide Crovetti, Hanka Mayhew, Alexia Kountouri, Claire Bennington, Silvia Rubio (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13244626.txt.
Description
Jean Marie Annoni and colleagues ran a worldwide project in which people with aphasia set the research agenda for their condition. Their report appeared in Research Involvement and Engagement in 2026. Aphasia's burdens reach far past language into emotional and social life, yet researchers choose the questions. This initiative, started by a person with aphasia and three laypeople, involved more than one hundred patients from fourteen countries, working in many languages.
A three-phase process generated topics, refined them in national co-design sessions, and voted them into priorities, with eleven countries joining the vote. Inclusive methods, under a framework built for lay involvement, let people with severe language difficulty lead rather than attend. The agenda confirmed earlier findings and sharpened one demand above all: public awareness must rise. The authors present the project as proof that priority setting can be co-created across languages when access is designed in.
Catalog record
| CREATOR | Jean Marie Annoni, Marina Charalambous, Jernej Sluga, Clotilde Marteel, Javier Gil, Reto Strähler, Fanni Eckhardt, Colin Lyall, Davide Crovetti, Hanka Mayhew, Alexia Kountouri, Claire Bennington, Silvia Rubio |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 109 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |