Community participation and consultation in palliative and end-of-life care: Building death literacy through a participatory theory of change
Yakubu Salifu, John Davies, Katie Eccles, Kofi Adu Gyamfi, Glenys Caswell · 2026
Read Community participation and consultation in palliative and end-of-life care: Building death literacy through a participatory theory of change by Yakubu Salifu, John Davies, Katie Eccles, Kofi Adu Gyamfi, Glenys Caswell (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13241610.txt.
Description
Salifu and a Ghana-UK team describe a community-led effort to build death literacy around palliative care in Ghana. Death literacy means the knowledge and confidence to face dying, death, and loss. In Ghana, open talk about death is often discouraged, and palliative care is scarce. The COMPASS-Ghana project used a participatory theory-of-change approach.
Activities included a thirty-seven-person stakeholder session, a planning workshop, and a focus group with nursing and midwifery students. Three themes emerged: shared language about death, care rooted in existing community forms, and collective agency. Participants shifted toward treating death as a shared community concern. The authors argue such locally grounded work fits public-health palliative care.
Catalog record
| CREATOR | Yakubu Salifu, John Davies, Katie Eccles, Kofi Adu Gyamfi, Glenys Caswell |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 68 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |