Community health worker support to adolescents and young adults with sickle cell disease: A multi-method analysis on transition-related support

Jayanne Forrest, Claudio Galea, Caren Steinway, Olivia Teng, Jack Chen, Sophia Jan, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Biree Andemariam, Katherine Wu, Emmanuel Nortey, Kim Smith-Whitley, Symme Trachtenberg, Tanisha Belton · 2026

Read Community health worker support to adolescents and young adults with sickle cell disease: A multi-method analysis on transition-related support by Jayanne Forrest, Claudio Galea, Caren Steinway, Olivia Teng, Jack Chen, Sophia Jan, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Biree Andemariam, Katherine Wu, Emmanuel Nortey, Kim Smith-Whitley, Symme Trachtenberg, Tanisha Belton (2026) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13217459.txt.

Description

Jayanne Forrest and co-authors present a 2026 analysis of community health worker support for teenagers and young adults with sickle cell disease. The focus is the move from children's to adult care, a handover where health often deteriorates. The data come from the worker arm of the COMETS randomized trial.

Records covered 120 participants, median age about nineteen. Workers reached 95 percent of them within a median of five days. Each participant set on average two and a half personal transition goals, and 70 percent were achieved within six months. Case notes clustered around transition readiness, lifestyle improvement, and hospitalizations or emergencies. The authors conclude that community health workers can deliver effective, scalable transition support and suggest testing the model in other childhood chronic diseases.

Catalog record

CREATORJayanne Forrest, Claudio Galea, Caren Steinway, Olivia Teng, Jack Chen, Sophia Jan, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Biree Andemariam, Katherine Wu, Emmanuel Nortey, Kim Smith-Whitley, Symme Trachtenberg, Tanisha Belton
YEAR2026
COLLECTIONPAPERS
FORMATTXT
FILE SIZE56 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13217459

Browse the full library · About the Tower of Babel