Posttrial Withdrawal Ethics in the Healthy Ageing Ecosystem for People With Dementia (HAAL) Study
Praisewin Johny, Anish KR · 2026
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Description
Praisewin Johny and Anish KR raised an ethics point in a 2026 letter about a smart home study for people with dementia. The HAAL project installs an integrated home system for three months, trains families to use it, then removes it at the final review. Early findings showed less stress for participants and caregivers. The protocol, the letter notes, says nothing about access after the trial ends.
That silence matters. Families rebuild daily routines around alerts and monitoring, and people with fading cognition lean on the support. Pulling it away can reverse gains and add anxiety and safety worries. Ethics frameworks such as the Helsinki rules expect plans for continued access to helpful tools. The writers urge such planning in assistive technology studies.
Catalog record
| CREATOR | Praisewin Johny, Anish KR |
|---|---|
| YEAR | 2026 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 3 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |