Improving transparency and quality assurance: Operationalising semi-automated data provenance tracking in a Trusted Research Environment

Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Adrian Martin, Chinasa Odo, Helen Rowlands, Ana Ciocarlan, Katie Wilde, Arlene Casey · 2024

Read Improving transparency and quality assurance: Operationalising semi-automated data provenance tracking in a Trusted Research Environment by Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Adrian Martin, Chinasa Odo, Helen Rowlands, Ana Ciocarlan, Katie Wilde, Arlene Casey (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177943.txt.

Description

Katherine O'Sullivan and co-authors present a 2024 dashboard that tracks where linked health data came from, inside a trusted research setting. Linking data in such a haven must stay open to audit, so staff can prove each step was sound. The team built a first working form of the tool and tested it in real use.

Design ran in four stages, from joint sketches with users to a refined data model and a semi-automated capture step. Public talks checked that the design kept public trust. The final dashboard runs as an offline desktop app, shaped to haven rules.

Catalog record

CREATORKatherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Adrian Martin, Chinasa Odo, Helen Rowlands, Ana Ciocarlan, Katie Wilde, Arlene Casey
YEAR2024
COLLECTIONPAPERS
FORMATTXT
FILE SIZE2 KB
VERSION1.0
LICENSECC BY 4.0
RIGHTSCC BY
SOURCEEurope PMC

Source: https://europepmc.org/articles/PMC13177943

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