The SAIL MELD-B e-cohort (SMC) and SAIL MELD-B Young adult e-cohort (SMYC) – a reproducible methodological pipeline for dynamic cohort curation and research
Roberta Chiovoloni, Nisreen Alwan, Ann Berrington, Michael Boniface, Jakub Dylag, Nic Fair, Simon DS Fraser, Emilia Holland, Rhiannon K Owen, Sebastian Stannard, Zlatko Zlatev, Ashley Akbari · 2024
Read The SAIL MELD-B e-cohort (SMC) and SAIL MELD-B Young adult e-cohort (SMYC) – a reproducible methodological pipeline for dynamic cohort curation and research by Roberta Chiovoloni, Nisreen Alwan, Ann Berrington, Michael Boniface, Jakub Dylag, Nic Fair, Simon DS Fraser, Emilia Holland, Rhiannon K Owen, Sebastian Stannard, Zlatko Zlatev, Ashley Akbari (2024) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-13177920.txt.
Description
Roberta Chiovoloni and co-authors describe two Welsh cohorts built to study the burden of living with many illnesses. Their 2024 paper uses linked, anonymized health and admin data in a secure databank. The main cohort holds 5,180,602 people. The young adult cohort holds 896,155. All were registered with a Welsh GP at some point from 2000 to 2022.
A repeatable pipeline builds and updates the cohorts as data grow. It pulls records tied to new concepts of burdensomeness. The project seeks new clusters of burden signs, early life risk factors, and ways to model prevention. In the main cohort, the most common conditions were depression, anxiety, asthma, high blood pressure, and eczema. Young adult patterns are also reported.
Catalog record
| CREATOR | Roberta Chiovoloni, Nisreen Alwan, Ann Berrington, Michael Boniface, Jakub Dylag, Nic Fair, Simon DS Fraser, Emilia Holland, Rhiannon K Owen, Sebastian Stannard, Zlatko Zlatev, Ashley Akbari |
|---|---|
| YEAR | 2024 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 2 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |